Perhaps the question that comes to mind about ALS Motor Neuron Disease is that: What is the best possible care that can be provided for someone with this condition? There is no cure, thus, it would be impossible for the individual to recover. Instead, you will see how the condition will progress to its severity and there is nothing that you can do about it.
The focus of care with MND is achievement of comfort. As the disease progresses, the individual will start to manifest severity of symptoms. The onset of MND is further classified according to parts of the body or system that is affected.
Limb Onset Type. Disease manifestations of this type involve weakened arms and legs. As such, Bluebird Care Oundle personnel will observe the patient to have difficulty in gripping or holding objects. The individual may also experience frequent tripping up of foot as the ankle and hips start to manifest symptoms of weakening. Simple tasks of combing the hair or trying to tie own hair may become too difficult for the individual during this stage. Eating well as activities involving grooming will require assistance. Be ready to offer support as the individual may also express frustration in trying to accomplish these tasks.
Bulbar Onset Type. This is the most common type of MND, where slurred speech is the first symptom observed. As the disease progresses, swallowing will soon become a problem. As such, there may be a need for tube feeding, not just to sustain the individual’s nutritional requirement, but to prevent aspiration as well. Note that the intellectual capacity and memory of the individual is not affected, such that he or she can still converse by hand signal. It would help to have words or photos printed on paper ready to help him convey possible requests like turning on the TV, putting some music, changing clothes or opening the window for him.
Respiratory Onset Type. This is the rarest form of MND. Onset of symptom is difficulty or shortness of breath. However, this may start as difficulty in breathing when lying down which can later on progress to a more severe form. Some individuals may also experience fainting spells. This may be secondary to the oxygen not reaching the brain. As such, it is imperative that the individual has someone to Care in the home oundle for him.
Regardless of the type of onset, individuals with MND will eventually progress to the end-stage symptoms which involves shortness or difficulty of breathing and paralysis of the whole body. During this stage, the individual will become drowsy and fall deeply asleep. Difficulty of breathing cannot be relieved by mechanical ventilation as the lungs cease to function. It is expected that families of individuals with this disease have already coordinated with the physician for plan of care during the first stages of illness. The level of care and intervention that is required during this stage will depend on the plan of care that the family and the patient agreed upon in the early stages of MND.